Privacy Policy

We value your privacy and aim to protect your personal information. This Privacy Policy explains the data that we collect, why we collect it, and how we use and manage it.

Personal Data:

If you choose to use our contact form, we collect the following information:

  • First Name
  • Last Name
  • Email Address
  • Phone Number
Why we collect your information.

We will use this information to contact members of the New England Family Study to: a) provide updates on our research and discoveries; b) invite you to participate in new studies that we have underway.

How do we keep your information safe?

We have organizational and technical processes and procedures in place to protect your personal information. However, no electronic transmission over the internet or information storage technology can be guaranteed to be 100% secure, so we cannot promise or guarantee that hackers, cybercriminals, or other unauthorized third parties will not be able to defeat our security and improperly collect, access, steal, or modify your information.

What are your rights?

Depending on where you are located geographically, the applicable privacy law may mean you have certain rights regarding your personal information

How do I exercise my rights?

The easiest way to exercise your rights is by filling out our contact form, call us at 401-863-3381, or email us at We will consider and act upon any request in accordance with applicable data protection laws.

Disclosure of Your Information

This information is for the use of the NEFS research team only and will not be otherwise shared.

Contact us.

If you have questions, please call our study office at 401-863-3381 or email us at